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On this day we really thought she was doing better, this was the first time since being off the vent she was holding up her oxygen and this was the first was able to hold her and kiss her. Allah SWT gave me these moments to cherish. Alhamdulilah 🤍
nikeisha.el
60.1K
·2023-7-12Leigh’s Syndrome is different in every child, Zahra had minor signs and symptoms that on their own you wouldn’t really think much of but when they were put together it painted a picture of mitochondrial disease. Zahra’s breathing was affected very early on which is very rare in children with Leigh’s Syndrome, respiratory failure in most cases is the last peice of the puzzle. Brefore these signs she was a happy healthy baby. Alhamdulilah for everything, Allah swt knows best and has put us on this incredibly difficult path. Zahra is our angel who showed us this disease and who has saved many generations to come inshallah 🤍🕊️ #zahrasstory #childloss #mitocondrialdisease #leighssyndrome #missyou #lifeafterloss #greifjourney #youarenotalone
nikeisha.el
90K
·2023-7-15This day was so special to us, Zahra was obsessed with the wiggles and for them to come and see her is a memory we will never forget 🥺🤍 #missyou #greif #zahrasstory #leighsdisease #mitochondrialdisease #childloss
nikeisha.el
377.4K
·2023-7-11I always wonder what you would be like as you got older, today you would have been 3 years old. I can never find the words to express how unbearable it is to live in this world without you. My heart will forever be broken 💔 You taught me the true meaning of love, I’m beyond grateful that I will forever be your mama. Alhamdulilah Allah blessed me with you and then made you an angel of Jannah where you will forever ask for me Alhamdulilah 🤍🤲🏻 Happy 3rd Birthday my sweet girl. I miss you 🤍 #zahrasstory #childloss #leighssyndrome #fyp #heartbreak #mitowarrior
nikeisha.el
1308
·1-312024 has been the year of healing. 2024 has been an extremely difficult year of grief and discovery. Alhamduliah I smiled, cried and trusted Allah SWT with everything I had. Alhamdulilah 🤲🏻 #zahrasstory #childloss #leighssyndrome #heartbreak #mitowarrior #2024
nikeisha.el
142
·2024-12-29Heartbreak is an understatement when you have lost a child. Grief creeps up on you when you least expect it, its been over a year since my beautiful girl left this earth and still i feel like it was just yesterday i got to kiss and hug her. 💔 When i think of how long its actaully been my heart breaks all over again. 💔 I miss you sweet girl 😔🤍 #zahrasstory #childloss #leighssyndrome #lasthug #lastkiss #heartbreak #mitowarrior #endlesslove
nikeisha.el
8218
·2024-11-27Heartbreaking to hear about the news of beautiful Daisy. We are all praying for you beautiful baby 🤍 #zahrasstory #childloss #leighssyndrome #prayingfordaisy
nikeisha.el
11.3K
·2024-11-20